I guess the most exciting thing I have to blog is that Darcy is now walking, and has been for about four weeks now. We call him "Wobbly Bob" as he is still very much all over the place, but he's doing incredibly well, and can even climb up ladders, as I discovered when I found him sitting atop his brother's bunk bed. So our goals in relation to mobility are running, hopping, jumping, and walking on un-even surfaces and up or down stairs - none of these he can do yet, but we are certainly well on his way.
Darcy's inital diagnosis of CP Diplegia was moderate, but we feel he now falls into mild, as he's had the time to catch up on a developmental basis, due to his prem background.
We still have lots of sleep issues. We occassionally get a full nights sleep, but most nights I am still up at some dreadful hour with him. We have recently applied for Respite Services, so that we can have some caring funds to assist us in getting a couple of good nights sleep.
Overall, Darcy's CP has taken a bit of backburner, as we are currently going through diagnosis for Aspergers (or at least something on the Spectrum), Sensory and Auditory Disorders, and Vacant Seizures. None of these things have been confirmed as yet, but we are in the process.
It's a little early to diagnose Aspergers or Autism Spectrum Disorders, but since he already shows such strong characteristics, we have commenced the process. It can also take up to approx. 9 months to get through all the testing and appointments, so the Paed has suggested we get started now.
Appointments coming up include a Neuro Appt, and probably a MRI and Brain Activity Scan, Paed Psych Appt, 2 Year Corrected Development Review, along with our normal weekly activities including CP Playgroup, Hydrotherapy, Physio, OT and Speech.
His vocab is fantastic and he knows lots and lots of words, but struggles to put them together or communicate with words....we are definitly amazed at his ability to mimic and say words though!
I think that's about it at the moment. Botox and any Leg/Foot Accessorries have been put on hold, to see if he can continue to deveop without them.
Love Rach.
